Wednesday 11 February 2009

I have wheels, lovely lovely wheels!

Hello all,

Have posted below about some trials into MS so go and take a gander if you are interested. Well well well, what can I say? So much has happened with my frame of mind over the last couple of weeks. About a month ago, my mum suggested that I go into town and use one of the mobility scooters to try them out. I said NO WAY quite adamantly, 2 weeks later I found myself on one. To me, in my head they were for larger or older people, not a 27 year old young mum. When I spoke to my MS nurse about this, he said I had to use my stubbornness to get myself out and about, as scary as it might seem. So I found myself on the phone booking a free scooter at a shopping centre. At first I was a bit embarrassed, but when I realised no one was staring a me, I was fine. The only problem I found was that some shops are not designed for scooters and are a little tight. You end up nearly taking racks of clothes out or knocking over rails! And reversing is a whole different matter.......try going forward into a lift and then getting out of it beeping like a reversing lorry!!!! So I am seriously considering buying a scooter. Watch this space.

I HAVE BOUGHT A CAR! By continuing on the theme of getting out and about I have redeemed my disability living allowance mobility component against a new car. I am hoping to get hand controls so when my legs are having an off day, I can still get out and about. Here is the link for those of you who are interested in it :
http://www.ford.co.uk/Cars/NewFiesta?campaignid=Fiesta&advertiserid=Google&bannerid=Ford_Fiesta

It is a 3dr and magenta on the pic but I have ordered a 5dr automatic in bright blue.

My Physio team have also given me a rollator walking frame (as pictured below) for around the house but I think I will probably use it around and about.

Ava is crying so must go and make milk!
Take care,
Emma x

Trials

Hi all,

I have been approached and asked to advertise some trials into MS on here. Just because I may be able to attract some different people who are interested in helping. Here is all the info you need:

A Clinical Research Study Evaluating An Investigational Medication for Relapsing Forms of Multiple Sclerosis
Medical researchers are enrolling people in a worldwide clinical research study for people with relapsing forms of multiple sclerosis (RMS). This study will assess the safety and effectiveness of an investigational study medication versus placebo (an inactive substance which contains no active medication) in people ages 18-55 years old with RMS.

The investigational medication used in this study is called teriflunomide (ter-i-flün-ō-mïde). It is derived from leflunomide (le-flü-nō-mïde), also known as Arava®. Arava® is already approved in many countries for the treatment of rheumatoid arthritis, another autoimmune disease.

The first step in determining eligibility for this study is to take the pre-screening questionnaire either online or on the phone. You will be asked a series of questions related to your health and be given additional information about study site locations. Visit http://www.tower3.msstudies.com/ or call 1-866-565-0245 today to learn more about the study and see if you may qualify

Happy trialling!

An insight to my life with MS