Tuesday, 28 April 2009

1st Infusion of Tysabri

Hi all,
This is going to be a very short post as I am shattered to say that everything went well with the first infusion. They took 3 attempts to get the cannula in but once up and running it was fine. Felt a little sick last night and today I am so tired that my body doesn't want to do anything. I am hoping that this fatigue will pass, I will write again soon in more detail.
Here's to positive thinking that the Tysabri will help,
Em xxx

Tuesday, 21 April 2009

Where do I start?

Hello all,
Yet again, it has been longer between posts on here than I would have liked so I have lots of news to share. Firstly my beautiful baby girl is over 6 months old now. I can't resist sharing another pic of her with you:

She is a good girl and is giving us a good nights sleep which is much appreciated and helps us get through the day! We are just getting her first passport and the photo above will be her picture. We are going to France in June with the family which will be lovely. I just hope she is ok on a plane.
It was Nathan's birthday back in Feb and I promised him tickets to watch Liverpool play at Anfield. I was unsuccessful in my first attempt but successful on the next. We are going to watch them against Newcastle next Sunday. You see, I say attempts to get tickets because if you want a disabled ticket you have to apply with all your details and then names are drawn in a ballot to see if you get a ticket. I have a wheelchair ticket and you can take up to 2 assistants (who are free) so it's a fuss to apply but well worth the value. We are also in the Kop grandstand and if you know about Liverpool that is the place to be so Nathan is very happy!
I went for a driving assessment yesterday for adaptations to my car to get me back on the road. It was very exciting but also very nerve wracking. My eyesight was tested and it wasn't very good due to the damage caused by Optic Neuritis but it was legal to drive...phew! I went out and had a drive of an adapted car - very very scary after driving with my feet for 10 years and not driven since August last year. But I started to pick it up! I am getting a steering lever for accelerating and braking (just a push/pull lever) and a steering ball on the wheel. Will definitely take some getting used to but will keep me a bit more independent.
Tysabri, Tysabri, Tysabri....I start it on Monday (27th). I am very excited but a little scared. I just want to get it started now. Of course I will keep you up to date with how it goes. I am also doing Physio once a week and using tilty table things which enable me to stand up straight for a short while and not look like the Hunchback of Notre Dame!
I think that's all the news so far, bye for now,
Em xxx

An insight to my life with MS