No work!

Hello all (bump picture 31 weeks)

Well as the title suggests, I have not gone back to work :-(
I should have started back today but instead I have had to admit defeat.

I saw the midwife last week and she told me I would be silly to go back and put my body under more pressure, so I thought I had better put mine and the baby's health first. I had also been suffering with a partially numb face (one side) and patches of numbness in my legs and feet. Which as it happens (I saw my neurologist yesterday) is a relapse. So much for being relapse free through my pregnancy! He did say in extreme disabling relapses they would treat it with steroids but in this case the relapse is more irritating than disabling! (So good news in a strange kind of way). The best way to describe the feeling in my face is of having been to the dentist and had an injection for a filling or something. You know that numbness you get where you dribble and don't notice!!!!!!!! (I know you've all done it!). Luckily only my top lip is numb so no dribbling incidents to report.

Any suggestions of what to do for 8 weeks are very welcome as I will be going insane. My headteacher has told me to take up knitting....may be worth a shot.

Well we have 8 weeks to go until baby Richards arrives and think we are quite sorted with everything. The nursery is done (and has been for a while!), the bits and bobs nearly all sorted and the pram travel system arrived to my parents house this morning. How very exciting, all we need now is baby. I'm taking sweep stake odds for the sex of baby Richards, the date of arrival (due 31st Oct) and the weight. Answers on a postcard............

Bye for now
Em xxx

IV Steroids

Hey guys,

Well I'm on day 2 of my IV steroids and seem to be having a good response to them so far........! Fingers crossed! For those of you that don't know what the steroids do I'll try to explain it. They feed them straight into the vein (intravenously) for an hour a day over 3 consecutive days. They only help you recover from a relapse quicker than you would do without them. They also only help you recover to the extent you would do anyway without them. So if you are likely to suffer from effects of the relapse the symptoms may disappear temporarily with the steroids but may return after they leave your system. So now it's just a waiting game. The elf seems to be loosening it's grip though so that is some relief, perhaps he's losing his energy!

I have had a really lovely week so far, it's half term so I'm not expected in school anyway. I have caught up with 2 old school friends, which has been lovely. I have been to my physio balance group and now I am off to have my hair done. I am off for a meeting with Occupational Health tomorrow morning to find out how I'm going to get back into work so I'll let you know how I get on with that. I am also meeting my favourite teaching assistant for lunch on Friday. Looks like I'll be having a quiet weekend as well as Nathan is off to watch Wales V Italy in the 6 nations on saturday. I'll be cheering on the mighty Spurs in the Carling cup final!

Take care xxxxxxxxxxxxxxxxxxxxxxxxxx

Symptoms

Hi all,
Hope you all had a good weekend and are suitably refreshed to face the week ahead. I'm on half term so have a reason not get out of bed! Normally, holidays are weeks spent catching up with other teacher friends who I haven't had the chance to see and this one is no exception. I had a lovely morning over a cup of tea, comparing our little darlings and what chaos they have been causing! It really is worth making the effort to see old friends.

I didn't get up to much this weekend, just a bit of pampering (well if you can call a leg wax pampering!) and watching the football. My husband Nathan is a Liverpool fan: say no more! He cooked a lovely roast yesterday and cleaned the house top to bottom, so thank you Nath!

I have news on the steroids; I am booked in for Tues, Wed, Thurs this week. I just hope they have the effect I am hoping for. I woke up this morn and my waist was even tighter than normal. I think my little elf has been working out at the gym because his grip is getting stronger!!! Painkillers it is for now. Thought I'd list my symptoms for you to let you know what course my MS has taken. It is different in everyone.

First symptom (2000): Optic Neuritis - In me, I lost my sight and went completely blind for 3 weeks. My sight came back but still a little like I've looked at the sun in the one eye. I now wear glasses for long distance.

1st Relapse, no steroids (Sept 2006): Slurred speech, found it hard to get words out for a couple of weeks. Treated as an ear infection because it was very similar in symptoms which is why I had no steroids.

Diagnosis (Oct 2006): Diagnosed after a couple of MRI scans. Offered a Lumbar puncture, but decided not to have one when Neurologist said that he would be surprised that if showed nothing and he was 95% sure I had MS. Not worth putting myself through the extra pain.

2nd Relapse, first course of IV steroids(May 2007): Numbness in legs, strange sensation to touch (as if legs aren't part of you). Unable to walk very far or stand for long periods. I had steroids and responded very well to them and was back on my feet very quickly.

3rd Relapse, steroids (Sept 2007): I started to get odd sensations back in legs and was unable to stand for long periods. But looking back I'm not sure this was a relapse just a re-emergence of old symptoms.

4th Relapse, steroids x 2 (Dec 2007 til present): Ms Hug (tightness around waist), Numbness from waist downwards, loss of core stability around my middle, loss of balance. I have one lot of steroids and I am now starting the second lot tomorrow.

Ongoing symptoms (that come and go:) L'Hermitte's: When I bend my neck, occasionally I get an electric shock type sensation shooting down my left arm. Uhthoff's Symptom: Increase in symptoms due to exposure to heat, my eyesight gets particularly bad.
Cold Feet and Hands: I was diagnosed with Rayanud's disease but since reading about MS I understand that this can be another symptom. Intention Tremor: When leg is in a certain position. Footdrop: Foot drags along floor during walking.

I hope this is of some use to those who read it. Those who may not yet be diagnosed might find it of some use to understand some symptoms, but those who don't have it may just be able to understand what people with MS go through. As I said everyone is different!

Right, if you are still awake I will say bye for now xxxxxxxxxxxxxxxxxxxxxx